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Dawn_MO | I just wanted to update you on my grandson's AVM. |
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![]() Veteran Member chefdawn5@hotmail.com 5503 posts Joined: Dec 9, 2005 Options |
Posted to Thread #24508 at 1:42 pm on Jun 17, 2013
My stepdaughter researched and researched and finally found a doctor who specializes in AVM surgery. His name is Dr. Spetzler and he is out of St. Joseph's Hospital in Phoenix.
He looked at all of Luke's medical records and tests to date and told my stepdaughter he was confident that he could surgically remove it. Luke went in and had an embolization on the 12th, another embolization on the 13th and the craniotomy was completed then also. It was a 13 hour surgery. My grandson is now in recovery, slowly starting to eat and such, and the surgery was a complete success. The AVM is 100% gone. All of his brain waves are normal, and he will be a happy healthy little boy again. I feel like I have witnessed a miracle. After all of the stress our family has gone through, and the ordeal that Luke has gone through, it feels so good to be happy again. The support that we have all gotten from our friends, family and community has been overwhelming. I can't stop smiling! Thanks everyone! If anyone would like to contact my stepdaughter regarding AVM, please email me and I will pass it on to her. I am urging her to become an advocate for this medical condition because there just isn't much out there about it, as far as support groups and such. Sometimes you just need to look reality in the eye, and deny it. –Garrison Keillor |
Other messages in this thread:
- 24508. I just wanted to update you on my grandson's AVM. - Dawn_MO - 1:42pm on 06/17/13 (22)
- That is wonderful news! Hope your family can relax and recover now. [NT] - ErininNY - 2:34pm on 06/17/13
- Fantastic! Such terrific news:) [NT] - deb-in-MI - 3:07pm on 06/17/13
- Amen. {{{Dawn}}} Thank you for sharing this miracle, [NT] - MarilynFL - 3:24pm on 06/17/13
- What great news! I'm smiling reading your post.I can't imagine how your cheeks must be hurting! : ) [NT] - barb_b - 4:18pm on 06/17/13
- Your step-daughter is so smart -- it really is up to us to see what help is available out there, - cheezz - 4:43pm on 06/17/13
- Aw. I love miracles & am always in awe of medical science. Such a happy-ending story! [NT] - Marg CDN2 - 5:25pm on 06/17/13
- such good news [NT] - AngAk1 - 6:05pm on 06/17/13
- That is so amazing and so wonderful!!! So happy for your whole family! [NT] - Heather_in_SF - 6:11pm on 06/17/13
- That is a miracle. God bless your entire family. [NT] - Anna_X - 7:02pm on 06/17/13
- So happy to hear this, and kudos to your stepdaughter! Wishing GS a speedy recovery! [NT] - DawnNYS - 7:25pm on 06/17/13
- What a stupendous update! I'm so happy 4 you and yours. How old is yr GS? May he get well soon! [NT] - wigs - 7:33pm on 06/17/13
- He is only eight years old and one of the strongest people I have evern known. He is amazing. - Dawn_MO - 8:49pm on 06/17/13
- If anyone is interested you can read about his journey on a site called Caring Bridge. - Dawn_MO - 8:52pm on 06/17/13
- Dawn_MO--I love that site & have followed the journeys of 3 different ladies on it. 4 those of U who [LINK] - wigs - 6:24pm on 06/18/13
- Dawn, I just read the link.... Big hugs... seriously big hugs. [NT] - barb_b - 12:19am on 06/19/13
- So happy for you all, Dawn. How wonderful. [NT] - Lana in FL - 11:07pm on 06/17/13
- St. Joseph's Hospital and The Barrow Neurological Institute it houses is ... - Michael in Phoenix - 12:32am on 06/18/13
- OMG Dawn, that is so wonderful. Great job on your stepdaughter's part too. Very happy for you all! [NT] - Barbara in VA - 4:10pm on 06/18/13
- So happy for all of you. What a brave family. [NT] - elaine - 3:34am on 06/18/13
- It was wonderful to read this. There are so many horrible terrifying accounts out there - PatBastrop - 11:42am on 06/19/13
- This is the most wonderful news! Big hugs all around, it does sound like a miracle! [NT] - MariaDNoCA - 6:50pm on 06/19/13
- Thank you all so much! I feel like I have had the weight of the world - Dawn_MO - 1:09pm on 06/20/13